Sunday, 27 October 2013

Anyone for Dessert?

For lunch today, I made one of the more challenging desserts in my recipe book. The recipe itself is straightforward, but the technique required to make it, is definitely challenging.

I made an apple crumble for me and the other half to enjoy. I, thankfully, get to cut out one of the difficult sections of the recipe as my mum is incredibly understanding and helpful. She peels all the apples for me, and stews them, providing me with containers already weighed out to the correct amount to freeze & defrost when I need them.

However, to make the crumble for the top requires the rubbing technique, a technique that can only be done by hand. And this is a technique that requires repetitive movements of the fingers and pressure applied to create the right consistency. Shouldn't be too difficult for most people, but for me, I suffer quite badly with pain in my fingers at the best of times, but doing this just makes it worse.

Never the less, I took my painkillers, psyched myself up and then powered on through. It had been a good day in general so far, so I figured that this shouldn't push me over the edge. And thankfully it didn't seem to. My fingers ache, even whilst I'm typing this, but it's not unbearable.

And here's the finished product:
This is just before it went in the oven, but when it came out (even if I say so myself), it was darn good!

Summer Is Over

So summer is officially over, last night our clocks changed which has resulted in me getting an hour's extra sleep and an hour extra in my day.

Right now, as I type, it should be gone 10am, and I'd be feeling guilty about still lazing around in bed rather than getting up and going to the gym and making something of the day. Instead, it's just gone 9am, I'm about to grab a coffee and then it's off to the gym I go. Woop!

I'm still waiting to hear about the interview. They said that I might know by the end of Friday if the answer was obvious, but I've not heard, so now I'm going to have to wait until Monday. Thankfully that's only a day away now, but this weekend has definitely been wished away with my desire to know whether I'm going to get to transfer or not. I had to explain to the interviewer vaguely about my condition though as he was asking me about working in other departments including stock management (which requires lots of heavy lifting and needless to say isn't a great idea for some one like me).  I know they can't discriminate against some one because of their condition, but it does always make me nervous making people aware of it before I've even got the job.

Only time will tell though whether I've mucked up my chances by not being able to be fully flexible in my approach to other departments. Hopefully he'll see past that, and see that I could be a great member of their team, and if he does, then I promise not to whinge about pain to anyone for a whole week.

Friday, 25 October 2013


The advantage of having to get up early to get ready for something that only takes a short amount of time, means it results in you have so much more potential to achieve something with the day if it transpires to be a "good" day.

Today is *hopefully* one of those days. I've got up early for my interview (see yesterday's post) and once it's done, it's home for a quick change and then I'm hoping to tidy my spare room and organise my filing system. Add to that maybe doing some baking, and maybe even squeezing in a visit to the gym, it should hopefully be a good day!

I guess I've just got to aim to achieve as much as possible, without overdoing it. I'm still trying to learn my limits, but I'm slowly getting the hang of this sh*t.

Thursday, 24 October 2013


I am one of the lucky zebras who still manages to hold down a full time job. At times this is incredibly difficult, and it definitely leaves me more tired than many people I know, but I do it. I can't afford not to these days.

A couple of months after my diagnoses I managed to land a good job with a fantastic company; one of the best employers in my sector in fact. The only issue? It's in a town 40 minutes drive from my home. The majority of the time, this drive is bearable. However, as soon as there's any issue on the main motorway between my home and this town, then it becomes a physical nightmare. Either you're stuck on the motorway at a complete standstill, unable to shift position a vast amount; or you're stuck in long lines on the back road meaning you've got to exercise your clutch control.

Both of these situations leave me in an incredible amount of pain, discomfort and exhaustion. And then, when I eventually manage to get to work, I have to work the remainder of the day being as chirpy and cheerful as possible. Fun times. I think not.

Add to this that it is a low wage (a good wage, but lower than the cost of living wage) and the amount fuel costs these day, this all makes it a bit of a nightmare and not ideal. What makes it more frustrating is that there is another branch of this company 5 minutes down the road from me. So, I've been waiting for jobs to come up there, and one finally did. Tomorrow I have got my interview, and to say I'm a bit nervous would be fairly accurate.

It has finally reached a point with the regular traffic issues, that if I don't get this transfer this time (this will be the 2nd attempt I have made this year), then in the new year, I will have to look for a position in my town but for a different firm, which I don't want to do yet. Quite a bit rides on this, and my health (and sanity) will both be affected quite drastically by this opportunity.

Only time will tell, but here's hoping.

Wednesday, 23 October 2013

Bad Days Ahead

Today is not a good day. I woke up (a good start, I know) feeling great and with lots planned for the day. Then I got up for a morning wee and that was it. I knew today was over before it had even begun. Pain shooting up my legs, through my back, my shoulders. Pain everywhere.

The trip to the loo was a necessity, so I powered on through, trying to remember how on earth it was possible to get pain in your toes and the very tips of your fingers. I climbed back into bed and fidgeted restlessly. No position was comfy, what I needed was drugs.

Thankfully, because I am used to these random onsets, I always ensure I keep water and at least one strip of both medications by my bed. So within a couple of rolls from side to side of the bed, I had popped the gut protectors and the painkillers. All I had to do was lie there and wait. After a while, the pain started to ease enough that I successfully managed to get a cup of coffee and a bowl of cereal (reasonably low rating on the amount of effort required to consume). With that, I grabbed my laptop charger (as thankfully I had brought my laptop up with me last night), plugged it all in and settled for what would seem to be a day in bed.

I can only assume this rough day has been brought on by a heavy session at the gym on Monday evening followed by a long morning of shopping with my mum yesterday. I still have days where I forget I need to pace myself, that I'm not a normal human being.

I was hoping to go to the gym again today, but as I woke up at 9, and it's now 2 and I've yet to leave my bed for longer than 5 minutes, I don't think this is likely to happen. It becomes a bit of a catch 22.

All I can do is hope that if I can drag myself downstairs and do a teeny tiny bit of very light exercise, then I might be ok enough to have a vaguely normal afternoon. A girl can hope anyway.

Tuesday, 22 October 2013

Gym Fever

Yet again, I actually achieved going to the gym, when I said I would. Right now, this feels like it's bordering on miracle status, and it does help.

Being a girl with hypermobility, when it becomes that time of the month, my joint pain flares up even more so than normal. I also suffer with horrendous cramping, all of which makes wanting to leave the house near on impossible. Going to the gym helps with this all though. The exercise alleviates the cramps.The exercise strengthens my joints, making them less painful.

So now, being the girl that I am, all I want is new workout gear!
Current lusts include:
(From Blogilates; direct link here. Shame I don't have the bum for them!)

(From Blogilates; direct link here. I'd love in a different colour though)

Both of these are from the wonderful Cassey who does POP Pilates on youtube, but that unfortunately means they're american, which means I cannot afford to order them in. Sad times.

I really do want some new workout stuff; predominantly tops and another pair of sweatpants. Ahh well, maybe when I get a job closer to home.

Monday, 21 October 2013

It Actually Happened!

I actually motivated myself to go to the gym on Saturday. I got up at 8.30am, went and had my nails and eyebrows done (because a zebra needs to pamper themselves from time to time) and then I went to the gym.

I was so proud of myself! I actually did it, and I'm doing it again tonight. As soon as the other half gets home, we're off to the gym, and we're gonna work up a sweat, and then we're going to come home and I'll cook us dinner. Because I actually get energy from the gym. It's shocking, it really is.

Unfortunately I've not started to feel the effects of it yet, but then again that would be weird if I could after only one proper session. Over the next week or so though, I should hopefully be able to minimise the crappy ache I constantly have through my entire body, and actually start to just have a mild ache. I'm so excited to be living in a minimal pain world again.

Tuesday, 15 October 2013

Life Update

In the last week, I have done sweet f**k all. The hospital appointment did result in my being off work for a week  but I failed to contact the girl I had blogged about. I really wish I could get over my anxiety about hassling people. I know I'm probably not hassling them, but I always worry I am.

The gym induction that I went to was really good and I am totally pumped to be back at the gym. Needless to say,  I was unable to go at all last week after what they had done,  but I am going tonight for the first time since induction, and I cannot wait!  It's going to mean actually getting a bit more dedicated to it, but I am ready for it. Exercise means stronger joints,  which means happier joints, which makes for a happy zebra.

Friday, 4 October 2013

Colds, Gym and Self-Consciousness

My usual standards of blogging have been going for the win as per usual. About 3 months without a blog, there's a surprise.

And the reason I'm now bothering to update my blog? Because I have a cold and I feel like poo. What does that have to do with Ehlers Danlos I hear people say? Well, I'm in the middle of a huge flair of pain because my body is so busy fighting this darn cold, that it's forgotten how to keep my joints normal. My finger's are so swollen I can't remove any of my rings off. I can't stand for more than 30 minutes at work, and all I want to do is sleep, more so than normal. But it's all good, it's only a cold after all.

In other news, I am taking up the gym again. I am, however, hopefully destined for success this time, as I have managed to convince my other half to join up with me. This will hopefully mean I'll remain motivated because I won't only be letting myself down, but letting him down too. And we can't have that now, can we?

We have an induction at 9am tomorrow morning, and I'm not going to lie, I'm actually quite excited. It's at the same gym I was a member at before, but I never had a proper induction there, and I'm hooping this personal trainer might set me some goals to work towards so that I can get my butt into gear. The only slightly depressing thing is, I'm going to go and do this, and then there's a huge chance I'm not going to be able to go for a week as I've got to go into hospital on Monday for another condition, and if they do what I want them to do, then it'll put me unable to work or do anything really for a week. Yay me.

All the time at home I'm potentially going to have next week though, post-hospital, could potentially lead to be a good thing. A little while ago, I finally discovered some one else in the local area who has the same condition as me, or rather my dad found her. She's around my age, and after weeks of faffing around, I finally added her on Facebook and eventually got accepted. Since then though, I haven't brought myself to be able to speak to her. But hopefully, next week might be the week that I get my arse into gear and manage to send her a message asking her a bit more about herself. She apparently does a lot of blogging and magazine articles for people about Ehlers Danlos Syndrome, so it will be interesting to speak to her some more.